Cystic Fibrosis? What’s that?
When our son Gavin was diagnosed at age 2 1/2 with cystic fibrosis, we didn’t have any idea what it was. The panic really set in when we found out it was a genetic disease because I was already 6 months pregnant with our second child. Sadly, our son Jake was diagnosed with CF through amniocentesis two weeks later. After the initial shock of the double diagnosis wore off, we started looking for a way to save our babies.
ShamRockin’ for a Cure grew out of our friends’ willingness to help us in the fight against cystic fibrosis. From the stage of the Verizon Wireless Amphitheatre, we watched the “army” that was supporting our family and other CF families like us grow to epic proportions. ShamRockin’ for a Cure has become our symbol of strength and hope... and in just five short years, ShamRockin’ for a Cure has raised over half a million dollars ($525,000 to be exact)! Money that goes to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. We thank the battalion of supporters that stand behind our family and the other CF families like us. Almost every day, a child with cystic fibrosis dies a horrible, tragic death.... we’re not going to stop until a cure is found! Gavin, Jake, and the other 30,000 people fighting this disease deserve to live a full, healthy life! Join us on March 8, 2014 to “eat, drink, and cure CF.” We won’t stop working until CF stands for “Cure Found!”
Our Story - A Message from the Founders of ShamRockin' for a Cure